Showing posts with label Attitude. Show all posts
Showing posts with label Attitude. Show all posts

Monday, May 31, 2010

May 31, 2010 - The Philosophers' Stone

It is the end of May and things are looking up: Marc's counts are up, spirits are up, smiles are up, outside temperatures are up, and best of all Marc is up and on his feet.

These days, Marc is waxing philosophical.  Having had the opportunity to see him recently, his musings and thoughts are fresh. The year, not what was planned or expected, has been about fighting and resting--attacking the invader inside his body and then letting the body recover for the next battle.

There have been soldiers on the field with him, his pals on the 11th floor at UCSF and they didn't all make it. A lovely older Indian woman whom many of us met and shared the solarium with she and her family, first lost her feet, then her life. Marc's friend steve, whose son works for Adidas and has been talking with Marc about the possibility of working with him, didn't make it either. Another friend, a woman named bob, decided after so much fighting that she wasn't going to win the battle, so she put up her white flag and asked to live her last few days in peace, without chemicals pumping through her veins, nurses taking blood work, without trying so hard to live.

Marc honored the strength it took to stop fighting when the outcome was clear. To admit defeat and gracefully accept the days that remain is a kind of strength Marc hadn't quite seen before.  Speaking purely in terms of cold statistics, some make it and some don't. And so statistically speaking, even while the loss was fresh and potently painful for bob's family and for Marc and his family, bob's daughter posed that "perhaps bob didn't make it so that Marc could." ...perhaps.  For Marc, there is a mixture of grieving, honoring, celebrating these friends, these companions on the field.

It might shock you to hear that looking back, Marc does not wish "it" never happened. He does not wish this cancer never challenged him. Because in the battle, in the fight, he gained an internal fortitude, a strength, an absolute clarity about his priorities.  If he wished the cancer away or the memory of the experience, he would lose what he has gained. And that is not acceptable, to put it as plainly as Marc might.  He is more aware than ever of the goodness of life and of what is truly important. [Not. to be clear. that-he-has-any-desire-or-intention-of-going-through-it-again.]   Though this poetry of thought was heard in person, through email exchanges Marc further explained why he feels this way and it's so poignant you have to hear it from the source:
"Part of my reasoning for thinking this way lies in my belief that everything happens for a reason and although I am [un]sure of the exact reasoning for it yet, I know that someday I will. It is one of the key reasons for my positive attitude throughout this fight. I am better off for what I experienced and I am looking forward to using this once I begin life again. I have been [given] a second chance and I plan on making the most of it.
 It is a funny thing, after the diagnosis was told to me, the main focus was on recovery and survival. The idea of dreaming about the future was gone, being the obvious dreamer that I am, everything became a day to day fight. Now that the hope of remission is on the horizon, I still utilize the thoughts of staying in the present and looking to whats next. But, I have started to dream about what I may be able to do from this point and I am excited about the possibilities."
The philiosphers' stone was the sought after and never found alchemical treasure that would purify lead and turn it into gold. Allegorically, Marc seems to have found that catalytic stone. It is the paradigm with which he faced this trial.  It transmutated the cancer into a valuable experience.   Life is full of joy and opportunity and yet it is also so full of inevitable challenges, tragedies, and heartaches. We seek after circumstances and opportunities that position us towards happiness and yet is it what we do with them that is possibly more critical? Could it be that our outlook and not our circumstance is the key to transforming our lives from lead to gold? Could it be?

The memorial day weekend was spent with family watching basketball, enjoying a drink or two, good food, golf, and enjoying his nephew, his immediate family and extended family, and sharing his trademarked dry wit. His vital counts and blood sugar were on the edge but he managed to ride their waves just fine.

So, what are we waiting for? Final P.E.T. scan will be on June 19, bone marrow biopsy on June 22. Test results will take a few days to weeks to be processed. But, not so secretly, I hope for the final confirmation of remission by July 4th, which will be a most important birthday of one Marc Giannetto.

But in the meantime, today brought good news!  Marc went in to have his vital counts checked and they were in fact, so good, that the doctor doesn't need him to come back in for blood work for a while... "enjoy and I'll see you at the end of the month" said the doctor.

Indeed.


Posted by amber with Marc's consent

Monday, May 3, 2010

May 3, 2010 - Confessions of a Serial Hospital Patient

For the past few weeks... Marc has been actively posting on Facebook... so here is a compilation of what's been up in his own words.... a slightly voyeuristic peek into his occasional commentary on his life. It covers all the important topics: golf, Duke, and, yes, his chemo, energy, and progress. They are posted here in reverse-chronological order.  Anyone else looking forward to R[emission]-day? Holler!
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Thursday, April 15, 2010

April 15, 2010 - An Update... and a Nice Break from the Dreariness of Tax Day

Marc sent me another update today and I wanted to get it up right away. There is also a new addition to the rally-hat gallery and I have to say I love the creativity, the depth, that the gallery is gaining.  Keep rocking your hats for Marc!

The short story: too much nausea and bone pain, too little energy and white blood cells.  But as usual, a good outlook and is generally enjoying, or rather, appreciating, not having to shave very much.

Here's some news from the hands of our favorite couch-surfer:


"I finished round 4 of chemo last wednesday and since then have not been feeling very well. The chemo itself went pretty well, they had trouble accessing the port the first night, which in rough translation means no sleep for marc on night one. once they got everything working i made sure that we were back on schedule to finish by the 7th so i could get by butt home. Everything from that point on went pretty smoothly, had a great easter with your family who cam and entertained me for a few hours. and then on  wednesday I of course was released as planned.
The bone pain started thursday afternoon and lasted until about monday. The feeling is basically like a bruise all over the body. three-four days of that gets tough but everythng comes to an end at some point. I still have some bone pain in my knees and legs, nothing a few pain killers can't fix. I just results from my blood test today and all of my counts are pretty low. that accumulates to a weekend of couch surfing until monday when we findout if I need any transfusions. So right now i have a little bit of remaining pain and after writing this email, I can guarantee that all of my miniscule amount of energy will have drained and I will head back to the couch for recuperation.
Mood: surprising high and optimistic tho very little energy to show."
Marc will head back on the 23rd of April and until Monday at least will be honing his movie knowledge and texting skills and sleeping talents.  Keep the love coming and the hats.



(posted by amber with Marc's permission)

March 29, 2010 - The Overdue Update

Hey all, this is the long overdue post from a few weeks ago, post elijah party and melissa birthday fun.  I'm actually taking it straight from an email Marc sent about how he is doing... with some photos and commentary towards the end. Marc wrote on March 29, 2010:



"Sorry that I haven't gotten this update to you sooner, I have been pretty busy. The last 12 or so days have been great. The birthday was great but sorry I don't know if we got any mask pics and definitely no golf pics either. I had a lot of bone [pain] for the first couple of days because of the neulasta shot. that all went away around tuesday. I had a PET scan on saturday and am going to the doctor today to find out the results and get blood drawn. The pathology came back on the bone marrow biopsy I had on the 17th and it showed no signs of disease according to Aunt Lisa. I haven't heard from the doctor yet on that either.
On a less medical note, two of my friends from college drove up from the LA area on friday for a couples of hours tosee me and it was really great seing them. It has been years since the last time I saw them so that was fun. I spent yesterday hanging out with the Kyle, Denny and Lois Anderson and they had for dinner. It was nice hanging out with them as well. My roommate from college is coming up today from Bakersfield, its been a while since I saw him so I am excited about that. And that is pretty much it from here. I had a great time these past several days and a lot of visitors/ support.
 I will let you know the results of the PET scan as soon as i know. I hope all is going well for you and that you are not over working yourself. Take care and I will talk to you soon." 
After much debate, i am leaving  in the personal note to me at the end... only because i think it shows something about Marc's character that is worth celebrating, it does not change in the midst of his own very involved life situation--he is not consumed by himself. Somehow in the midst of everything he is fighting he still has energy to care, and he cares so much for each of us reading this now.

Here are some photos from the long-awaited much enjoyed elijah-birthday-party.  It is a bummer that there is not one with a mask as i thought that had some comic-book appeal to it, nor is there a photo of the golf trip... but there are plenty of elijah pictures and one of elijah and Marc together and in the end, that's probably just about right.



(posted by Amber with Marc's permission)

Monday, March 8, 2010

March 8, 2010 - "My Best Days are Ahead of Me"

me: "so Marc, anything particularly noteworthy or really so, well, un-noteworthy as to be worth mentioning to your adoring fans?" [note: although his first thought was surely, "what? ... you are so weird" he kept it in and answered as follows]

Marc: "well, actually, can you add music? there is a song called 'my best days' by danny gokey. is it possible to include that? it really summarizes my attitude right now towards everything, so it would be great to include it."
well folks, per request, this post has a musical score. i couldn't figure out how to embed the audio file, so i have embedded the music video (below). go ahead and hit play and then continue with the rest of the post so that your reading experience has a soundtrack. alternately you can watch and listen to the video and then continue on, it is kind of a cool video. your choice.


today Marc said he is feeling okay, pretty good in fact. as we chatted he was in the car on the way over the hill and through the woods, to grandmothers house. so, fun. 

last week was pretty rough with significant nausea and bone pain. while the nausea is quite certainly a chemo side-effect, the bone pain could be a side-effect of the chemo, the shots he's been given to boost his immune system, or it could just be the cancer itself. there have also been not quite enough sleep and when sleeping too many dreams of the hospital which aren't nightmares perse but they certainly aren't delightful and are surely side-effects of his lengthy hospital stays.

while i focus on how awful that must have been, Marc re-focuses me (us) on his willingness to go through it all if it is going to make him well. he can handle the process, he's just looking forward to everything that the process will afford him..."my best days are ahead of me."  there is no way out but through; no sense in trying to subvert reality.

but today and the past couple days Marc has been feeling okay. i wonder if it could be that some friends stopped by on saturday and made him a chicken salad. nothing like good friends and good food to make the body and soul well, am i right?

friday Marc will return to UCSF. he'll start with a couple of tests, another bone marrow biopsy and a PET scan. hyperlinks are included for each of those tests, if you click on the word it will direct you to the mayo-clinic dictionary to learn more about them. these tests will both be significant in determining the course of treatment. the PET scan results should come back quickly and will help the doctors know if the treatment is working and how to continue treatment. chemo should resume on saturday and conclude, if all goes according to plan, just in time for elijah's 1st birthday.
"...Life hasn't always been a party
but mostly it's been good
There's only one or two things that I'd change if I could
I dont get lost in the past or get stuck in some sad memory yah
My best days are ahead of me...

...I've got sunsets to witness
dreams to dance with
[that are not of hospitals!]
beaches to walk on
and lovers to kiss
there's a whole lot of world out there
that I can't wait to see
My best days are ahead of me
My best days are ahead of me..."
thanks for reading, for your support, friendship and love on this unique journey. there is an updated photo to this post: "February 20, 2010 - Solarium, Scrabble & Special Visitors" and a couple more rally hat photos, so click around and see the new stuff. oh yeah and one last thing... yeehaw!

(posted by amber with Marc's permission)