me: "so Marc, anything particularly noteworthy or really so, well, un-noteworthy as to be worth mentioning to your adoring fans?" [note: although his first thought was surely, "what? ... you are so weird" he kept it in and answered as follows]
Marc: "well, actually, can you add music? there is a song called 'my best days' by danny gokey. is it possible to include that? it really summarizes my attitude right now towards everything, so it would be great to include it."
well folks, per request, this post has a musical score. i couldn't figure out how to embed the audio file, so i have embedded the music video (below). go ahead and hit play and then continue with the rest of the post so that your reading experience has a soundtrack. alternately you can watch and listen to the video and then continue on, it is kind of a cool video. your choice.
today Marc said he is feeling okay, pretty good in fact. as we chatted he was in the car on the way over the hill and through the woods, to grandmothers house. so, fun.
last week was pretty rough with significant nausea and bone pain. while the nausea is quite certainly a chemo side-effect, the bone pain could be a side-effect of the chemo, the shots he's been given to boost his immune system, or it could just be the cancer itself. there have also been not quite enough sleep and when sleeping too many dreams of the hospital which aren't nightmares perse but they certainly aren't delightful and are surely side-effects of his lengthy hospital stays.
while i focus on how awful that must have been, Marc re-focuses me (us) on his willingness to go through it all if it is going to make him well. he can handle the process, he's just looking forward to everything that the process will afford him..."my best days are ahead of me." there is no way out but through; no sense in trying to subvert reality.
but today and the past couple days Marc has been feeling okay. i wonder if it could be that some friends stopped by on saturday and made him a chicken salad. nothing like good friends and good food to make the body and soul well, am i right?
friday Marc will return to UCSF. he'll start with a couple of tests, another bone marrow biopsy and a PET scan. hyperlinks are included for each of those tests, if you click on the word it will direct you to the mayo-clinic dictionary to learn more about them. these tests will both be significant in determining the course of treatment. the PET scan results should come back quickly and will help the doctors know if the treatment is working and how to continue treatment. chemo should resume on saturday and conclude, if all goes according to plan, just in time for elijah's 1st birthday.
"...Life hasn't always been a party
but mostly it's been good
There's only one or two things that I'd change if I could
I dont get lost in the past or get stuck in some sad memory yah
My best days are ahead of me...
...I've got sunsets to witness
dreams to dance with [that are not of hospitals!]
beaches to walk on
and lovers to kiss
there's a whole lot of world out there
that I can't wait to see
My best days are ahead of me
My best days are ahead of me..."
thanks for reading, for your support, friendship and love on this unique journey. there is an updated photo to this post: "February 20, 2010 - Solarium, Scrabble & Special Visitors" and a couple more rally hat photos, so click around and see the new stuff. oh yeah and one last thing... yeehaw!
(posted by amber with Marc's permission)
aw Marc, you're sappy, i love you!
ReplyDeleteXO,
Am
Marc, I love that song! And I love that you have such a positive outlook on this whole thing. I'm praying every day for a speedy entrance into remission!
ReplyDeleteTake Care,
Jessica Massey
Marc, I hope you are getting settled in tonight...by tomorrow you will be inspiring others as you always do! Know that you are loved as you enter this next phase...we are all looking, praying and knowing that there are "better days ahead." love ya lots...auntie wendy
ReplyDeleteHey Marc,
ReplyDeleteWelcome Back Home to Truckee...that is an amazing song and just perfect for you...you are going to have a whole long life time of better days. Thank You for your inspiration for the rest of us...you are such a special person and a blessing in all of our lives.
Always in our thoughts and prayers,
Jim and Lindy
Marc,
ReplyDeleteI wanted to dedicate this song to you today...hope you are having a good day!! And I hope there are many more to come. The girls and I are waiting for your remission and look forward to going on a trip together!! You are in my prayers and thoughts.....big hug!
http://www.youtube.com/watch?v=Q4JFBsmyiFc&feature=related